PUBLIC
HEALTH INFORMATION STANDARD
DATA
QUALITY AND GOVERNANCE
Paramita
Sekolah Teknik Industri dan Sistem, Universitas Telkom Bandung, Indonesia
ABSTRACT
Many public health organizations face data quality challenges due to the
complexity of the structure of clinical data systems, the massive growth in the
volume of clinical data, and the need for more standardization between clinical
systems in terms of naming and modelling. Data quality is an integral part of
data governance, ensuring that data management is fit for purpose. It refers to
the overall utility of a data set and its ability to be processed and analyzed
quickly for other uses. This study uses a qualitative research method which is
a principled research method that focuses on the description and understanding
of the observed social phenomena. Moreover, the results of the study were
obtained in the form of Standards for Data Quality according to the American
Health Information Management Association (AHIMA) and the European Health Data
Space (EHDS). In addition, there is also a discussion on privacy, security, and
compliance. As well as obtaining a data governance framework for the health
industry and good health industry governance. The conclusions from this study
indicate that the quality of data and governance data in governance in the
health industry is essential to ensure the achievement of effective and
efficient health services and can be relied upon in decision-making.
Keywords: data
quality, data governance, public health, health data.
Corresponding Author: Paramita
E-mail: [email protected]
INTRODUCTION
Many public health organizations face data quality challenges
due to the complexity of clinical system data structures, massive growth in
clinical data volume, and the need for more standardization between clinical
systems in terms of naming and modelling. Undoubtedly, poor data quality has a
tremendous impact on the efficiency and effectiveness of public health
organizations at both operational and strategic levels. All data problems are
associated with a need for more effective governance. Data governance programs
help public health organizations to determine the root causes of data quality
problems and identify the best solutions that address all dimensions of the
problem. Many disparate data sources within public health organizations are
growing in volume yearly, making controlling vital patient data an unattainable
goal. Understanding that data can lead to better public health decisions,
ultimately leading to better business, transforms organizations into a new era
of consuming patient data rather than producing it. Thus, effective data
management requires attention to data quality to help organizations carry out
suitable and quality data management.
Data Quality
Data quality
is integral to data governance, ensuring that data organization is fit for
purpose. It refers to the overall utility of a data set and its ability to be
quickly processed and analyzed for other uses. Data can be considered high
quality if it is fit to serve a purpose in a particular context, for example,
in operations, decision-making, and planning. Although this definition of data
quality seems straightforward, many other definitions differ regarding
qualitative or quantitative approaches to defining data quality. Data quality
is essential in adequately measuring and analyzing science, technology, and
innovation. This allows proper monitoring of research efficiency, productivity,
and even strategic decision-making (Vancauwenbergh, 2019).
Data quality
is synonymous with information quality. Data quality refers to the accuracy of
the data set and its ability to analyze and create actionable insights for
other users. People, processes, and technology are crucial elements for
achieving high-quality data. All companies and organizations that deal with
data need to define and follow a rigorous data quality approach to provide
solid solutions to improve data quality and integrity. Such an approach should
involve managing the lifecycle for data creation, transformation, and
transmission to ensure that the resulting information meets the needs of all
data consumers in the organization (Informatics, 2019).
Public
Health Industry
The Public health industry is health services for conditions of
complete physical, mental and social well-being (Hee Lee
& Yoon, 2021). The public health industry was not
just the absence of disease or infirmity but health service provider
institutions that are carried out by professional medical personnel organized
to provide complete health services and good medical infrastructure (Dash et
al., 2019).
Characteristics
of Data Quality by The American Health Information Management Association
(AHIMA)
Data quality characteristics published by The American Health
Information Management Association (AHIMA) can be the basis for setting data
quality standards because these characteristics represent general dimensions of
health data that should always be present. There are four domain areas
according to AHIMA (Karen
A. Wager, Frances W. Lee, 2021):
a. Application: The place where the data
comes from to be stored.
b. Collection: The processes by which data
elements are accumulated.
c. Warehousing: The processes and systems
used to archive data and data journals.
d. Analysis: The process of translating
data into information used for an application.
Characteristic
of Data Quality by European Health Data Space (EHDS)
Data quality is defined as fitness for purpose for user needs about
health research, policy-making, and regulation and that the data reflect
reality. The emphasis on data quality ensures that data is fit for
decision-making, supporting health research and population health (European
Commission, 2022). There are two main dimensions in
identifying data quality according to EHDS (Hendolin,
2021):
a. Institutional level: Dimensions of data
quality at the institutional or institutional level.
b. Data source level: The data quality
dimension resides at the source level.
Data
Governance in Public Health Industry
The public health industry establishes data governance rules to ensure
compliance with internal privacy and security policies and comply with
externally regulated regulations, such as the Health Insurance Portability and
Accountability Act (HIPAA) and the Privacy Act. The role of data governance
here is to transform compliance with internal hospital policies and external
regulations from manual audits to automated, real-time checks and change-driven
business processes that can instantly assess and manage risk.
For data governance to help organizations and public health systems,
organizations/industries must do the following:
a. Defining, agreeing, and communicating
data strategies, policies, standards, architectures, procedures, and metrics is
critical in emerging new models of care where 'trust' is a crucial element for
working collaboratively.
b. Enable compliance with data policies,
standards, architectures, and procedures-have a shared taxonomy and ensure
compliance.
c. Use a consistent framework to help
organizations sponsor, track, and oversee the delivery of data management
projects and services in increasingly complex environments.
d. Manage and resolve data-related issues-ensure
users that the data they use is accurate.
e. Provides a single system of records for
data that needs to be consistent across platforms (e.g., customer, product,
location) � supporting standardization in reporting and data protection
measures.
f. Create accountability and role
connectivity, vertically and horizontally-improve organizational/system
decision-making.
g. Promote understanding of the value of
data assets-sustain momentum in a data-driven digital economy.
h. Facilitating the increasingly crucial
digital conversation between patients and public health professionals about
care in the face of new regulations.
METHOD
This study
used qualitative research methods. This principled research method focuses on
describing and understanding the observed social phenomena. This method aims to
find the characteristics and phenomena that fall into one category. Then the
writer looks for the close relationship between the flow of symptoms that have
different/similar characteristics that are found. Furthermore, the authors
classify based on the nature of the symptoms that are classified to become a
theory (Ahyar et al., 2020). Qualitative methods can also be used to understand human or
social phenomena that can be described in complex and comprehensive words,
provide detailed information from informants, and are conducted scientifically.
This method aims to understand a context by leading to a detailed and in-depth
description of a condition in a natural context about what happened in the
field of study (Fadli, 2021).
RESULTS AND DISCUSSION
The Standard
of Data Quality according to AHIMA and EHDS
The table
below sets out the dimensions deemed most important at the data source level
and how they might be defined. It was noted that the list closely resembles how
quality is measured at cancer registries and other health information systems
internationally. At the level of the institution, it was considered appropriate
to revisit the matters of regulation (European Commission, 2022)
Table 1. Standard Data Quality of
American Health Information Management Association
|
Characteristic |
Definition |
|
Accuracy |
Data must
be correct; a valid value is an accurate value. Name typography errors are an
example of data inaccuracy. |
|
Accessibility |
Data that
is only available when decision-makers need it is useful. |
|
Comprehensiveness |
All data
needed for specific purposes must exist and be available to users. Data will
only be helpful if it has complete. |
|
Consistency |
Quality
data must be consistent. Using an abbreviation with two different meanings is
an excellent example of how a lack of consistency can cause problems. |
|
Currency |
Many types
of health data become obsolete after a certain period. The results of
recognizing a patient's diagnosis are often different from recording a diagnosis
at discharge. Therefore, the data must be up-to-date or updated. |
|
Definition |
Precise
definitions of data elements must be provided so that current and future data
users know what the data means. One way to provide precise data definitions
is to use data dictionaries. |
|
Granularity |
Data
granularity is usually referred to as data atomicity. Each data element is
"atomic" because it cannot be broken down into more minor elements.
Therefore, attributes and data values are clearly defined at the right level. |
|
Precision |
Precision
is often related to numerical data. Precision indicates how close to an
actual size, weight, or measurement standard is. Some health data must be
exact. As such, drug doses should not be rounded to the nearest gram when
drugs are dosed in milligrams. |
|
Relevancy |
Data must
be relevant to the purpose for which it is stored. Storage is very accurate;
data about favourite colours and hair types can be filled in promptly. Thus,
the data collected must be relevant to the patient's treatment goals. |
|
Timeliness |
Timeliness
is an essential dimension in the quality of various types of health data. For
example, lab values for critical examinations must be made available to
public health providers on time. |
Table 2. Data Quality by European Health
Data Space
|
Characteristic |
Definition |
|
Reliability |
How closely
does this data reflect what was designed to measure, and is it consistent
over time? |
|
Relevance |
An aspect
of data quality that determines if the data used or generated is relevant for
migration into the system. |
|
Timeliness |
Data is
collected within a reasonable timeframe and collected/reported on an agreed
date, for example, closer to the decision maker's decision time. |
|
Coherence |
Data is
consistent over time and across data holders and can be aggregated and
compared with other data sources. |
|
Coverage |
The degree
to which the data adequately covers the population/events (i.e.
representative). |
|
Completeness |
How
complete is the data variable? |
|
Collection |
Collecting
data for business decision-making, strategic planning, research, and other
purposes. |
|
Publication |
Documentation
of data after data collection and analysis. |
|
Delivery |
Clear data
processing procedures so as not to hinder meaningful reuse. |
Data Governance Framework for the Public Health Industry
Frameworks are used to develop desktop- or website-based
applications (Ward, 2017). Using a framework will make it easier for users to create
applications or websites (Pace et al., 2019). The public health industry needs a framework that can handle all
hospital's needs to provide excellent service to the community. There are
several kinds of frameworks (Sekhon et al., 2017). One of them is the ISO 38500 framework. ISO 38500 framework can
be developed as a proposed IT Governance model for the public health industry,
which helps carry out the vision and mission of the health industry. This
framework also uses Cobit 5 as an enabler as a guide in the monitor, run, plan
and build process; COBIT 5 framework is described seven categories of enablers (Nugroho, 2017).
Figure 2. IT Governance Model in
the Public Health Industry
The COBIT 5 framework enablers:
a.
Principles,
policies, and frameworks are used to guide the day-to-day management of the
hospital
b.
Processes are
used to describe various activities in the health industry to achieve overall
common goals
c.
Organizational
structures are entities whose job is to make decisions
d.
Culture,
ethics, and behaviour are used as benchmarks for successful governance
e.
Information
is a source of information generated and used in the health industry.
f.
Services,
infrastructure, and applications are used to process information and technology
services in the health industry.
g.
People,
skills, and competencies are used to carry out existing activities in the
health industry also and adequately participate in decision-making.
Good
Public health Industry Governance
To create
good health governance, roles above and below are needed to adequately regulate
the various policies and regulations stipulated in implementing health services
(Pyone et al., 2017). Complexity and challenges in the health system require
appropriate procedures in implementing health services to increase focus on
creating good health governance (Gostin et al., 2020). The following are components of good health industry governance (Jafari et al., 2019):
Table 3. Components Of Good Health
Industry Governance
|
Component |
Description |
|
Participation |
The
agreement of various stakeholders in this matter plays a significant role in
creating good industrial health governance. In this case, the participation
of the Ministry of Health will play a role in forming various policies,
regulations, laws, and decision-making that will support good industrial
health. |
|
Transparency |
Transparency,
in this case, is easy access to information on various available health
service platforms and the creation of sustainable information technology. |
|
Rule of Law |
A straightforward
rule of law is the paramount supremacy in good governance, including in the
health system, such as obtaining justice for all groups of recipients of
health services. |
|
Consensus
orientation |
Context
orientation is the role of all government stakeholders working together to
assist the community in overcoming various unrevealed health problems; this
is related to the social, political, and economic context. |
|
Accountability |
Accountability
is the commitment of the Ministry of Health to provide good quality services,
rule of law, and provide health services for the community in order to create
a fair treatment for the whole community. |
|
Efficiency
and effectiveness |
Efficiency
and effectiveness in providing health services with the support of various information
technologies in order to create efficient and effective health services. |
|
Responsiveness |
Establish
an effective justice system and provide guidelines for good industrial health
to create responsiveness to society and monitor patient rights. |
|
Equity |
Increase
understanding with citizens and stakeholders in health services to improve
service quality. |
|
Health
Orientation |
The
orientation of health, in this case, is that the government is expected to
focus on expanding health services, establishing a good lifestyle in society,
preventing disease, and increasing public health services. |
|
Decentralization |
In this
case, decentralization is delegating health authority and maintaining
managerial control to various provinces and remote areas. |
Good Public Health Industry
Governance in the health industry is the cornerstone of good governance (WHO, 2018). Public health governance will protect and improve public health
services by integrating and coordinating various relevant stakeholders and
establishing reforms to improve people's good lives (Phelan et al., 2020). Public health governance requires multiple policies that provide
synergy to deliver health services that are right on target. The role of
government, society, and various sectors is crucial for developing good
governance (Wenham & Eccleston-Turner,
2022).
CONCLUSION
Good health company governance is
essential to ensure the quality of data available to a health organization or
company. Health data is essential in determining strategic or operational
decisions for health companies. To ensure high data quality, corporate
governance in public health must comply with several principles, such as
transparency, accountability, and responsiveness. In addition, health companies
must also have an excellent system to manage and store health data and ensure
the security of this data. Data quality in the health industry refers to data
accuracy, truth, completeness, and reliability in health-related
decision-making processes. High-quality data in the health industry ensures
effective and efficient health services. It is crucial to pay attention to data
quality aspects in the health industry governance to achieve high-quality data
that can be relied upon in decision-making.
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